My beautiful baby Mason was born on the 25th of June 2019, and like many babies do, he started showing symptoms of eczema from an early age (November 2019 when he was 4 months old).
However, the symptoms soon became much more severe than would normally be expected, and at 5 months his whole face had become incredibly inflamed.
We took him to the doctor who said that he had severe eczema, and so she prescribed topical steroids for him.
I was still weaning off steroids myself. I was 3 years steroid free, having used them for 20 years, and had experienced some horrible withdrawal symptoms.
I always had severe eczema and got stronger steroids every time I visited the doctor. When I was 12 years old I got on one of the heaviest steroids. They worked, as long as I kept using them. And I used A LOT.
My baby died when I was 14 weeks pregnant but I didn’t know she died until 20 weeks. I believe it was because my body was in shock after quitting the steroids.
So I made the decision to stop using topical steroids – however, although I am now 3 years steroid free I STILL have skin flares.
But most importantly my own personal experiences of the terrible downsides of long term topical steroid use meant that I made the commitment that I will NEVER use them on my baby 😉
I am a member of an online Topical Steroid Withdrawal (TSW) support group, and I heard very good reports about other sufferers who had started the TSW Plan of a company called JooMo.
One of the main things that attracted me to this plan as a potential solution for my baby was that it was based around a range of products that were completely natural and free of preservatives.
It also offered the potential of dealing with the underlying cause of Mason’s problem, not just the symptoms.
As it seemed to tick all the right boxes and came with some excellent testimonials from others who had followed their Skin Recovery Plan, I made the decision to purchase JooMo’s recommended products and put Mason on their 4-Month Recovery Program.
It was December 2019, and Mason was 5 months old when he started, with particularly severe eczema on his cheeks and forehead.
Another issue that attracted me to this recovery plan was that it came with online support from the The JooMo Twins who had founded the company, and would guide us through it over the following weeks.
I explained to Kit, one of the twins, that “I don’t want to use steroids on Mason’s skin because I know first hand how It feels when you have to come off them.”
Within the first 3 days on the plan Mason became less itchy. By day 8 I messaged JooMo:
“He has his hands in a anti scratch suit. Normally, when we unzip his suit, his hands would go to his chest to scratch. Now he can play without his suit on!
Although his skin looked really bad still, we do see improvements already! It is still red and open (oozing too) But the big scabs are gone… he is less itchy and sleeps better at night.”
Up until 1 month of the plan his skin condition and itchiness fluctuated, leaving us very frustrated. His skin improvement plateaued and even worsened when he got flu on the month mark.
In Month 2 we went to a special baby doctor and she – of course – strongly advised to start using steroids. I told her we were not going to do that, as it did so much damage to my skin. She said his skin would only get worse and wanted us to see a doctor in the hospital. She wrote a letter, letting them know we wouldn’t want to use steroids but were open for an allergy test. I couldn’t get an appointment and just continued using JooMo (and a new, natural cream made of oats made by a dear friend of ours – tiny Todd)
“I am so happy to finally see improvements in his skin!! We are not out of the woods yet but we are getting there!!”
There was a set-back at the end of Month 2 where he was itchy and oozing for a couple of days. In Month 3 he saw improvements!
His skin had been in a rut of improving for 2 days and then it looked horrible the next day, but at the start of Month 3 his skin stayed clear. The progress was slow and I was always cautious about being too positive for fear of jinxing it!
We went back to the doctor and she told us Mason’s growth would be compromised and his development would be delayed if we didn’t use steroids. Then she checked him and he was perfectly fine!!
Our reward for being dedicated and seeing the plan through was that by Month 4 we realised that Mason’s body was better when using JooMo once per day, so we stuck with that for the whole month.
With 2 weeks to go on the plan, I sent a message to The JooMo Twins on the support group:
“There were times I really was sad because the improvements were so small sometimes. So glad you always took the time to take the time to reassure me. Super happy with his skin now. It can only get better!”
Because we found JooMo, he can now do normal baby stuff because he isn’t itchy all the time! Like playing with his big brothers and learning to eat!
There is still a way to go, we will keep you updated!
Stories like these make our hearts burst with the knowledge we have helped one more soul escape needless suffering.
It just showed that through all the ups and downs, how well it turned out by seeing the plan through and persevering.
It’s a wonderful feeling being able to help grasp such a sweet hearted little boy like Mason from the clutches of possible life-long steroid use.
The fact Tamara and Mason are such nice humans, with such lust for life, makes us even more determined to help the many thousands or millions still suffering needlessly.
It shows how CRUCIAL it is to stick to the plan and persevere. The behind-the-scenes microbiome and immune system strengthening work of JooMo is then given the time it needs.